Written: January 5, 2013 12:40
If you read this you will realize how good you have it.
I apologize for not updating this more than I have lately. If I’m not at clinic I’m at rehab and I finally made it to about 13 sessions of my 23 this week. That shows how hard it is to make your rehab because of all the necessary appointments. I’m doing well at rehab I’m now able to use the arm weight machines again just on a slow start because you definitely don’t want to hurt the healing area. Not much to talk about rehab besides it’s been fun getting to work out with my friend because they’ve been putting us down for the same routine. It really helps pass the time when you have someone to work out with. I’ve made so many friends here I’m truly grateful for that. Now for what’s going on with me health wise.
I’m having a few issues but nothing that isn’t common to have and they are on top of figuring out the solution. I’m needing to gain some weight and hold or they will resume tube feeds which is a pain to me because my stomach doesn’t tolerate them well and never has. So, I’m hoping to avoid that. My blood pressue has moments where it is elevated but the main concern is my heart rate has been going up too high when I’m exercising. One doctor took me off 2 medicines to see if that helps with the heart rate. My blood sugar has been all over the place so they’re having me see someone about that because if I do use insulin I’m very sensitive to it. I’m been having light headed spells. My lung function dropped a few percentages and was 50% in CFers because we still have the sticky mucus they have to keep these new lungs clean as possible. The crazy thing is for 20 years I’m coughed up mucus now I’m having the hardest time getting anything up!! The bad part about this is it’s staying stuck down in the new lungs and it’s very common for around the healing area in there for mucus to build up around it. Tuesday I will be having a bronchscopy again to suction out what mucus they can and this also tests for rejection. Now you may think rejection this fast. Well, it happens and there’s different degrees of rejection and this is why they do bronchscopies and keep a watch on all my levels. There is chance for rejection at any time but the first 3 months to a year is usually when they see it. Now, I’m not saying I am having rejection but I have been asked what do certain tests do and about appointments and this is why. They have to make sure everything is running smoothly so if there is ever a problem they can solve it. I am currently off IV antibiotics but still taking my inhaled one. Whether i go back on them will be determined in the next week or two. The infections I previously had in my old lungs of course are still in my body so I have my sinuses and bronchical tubes to worry about but nothing uncommon. I’ve been asked how do I feel. I feel much better than I did weeks ago, I’m only at 50% and yes that feels so much better but I’m still trying to adjust to new lungs in my body, so until my lung capacity fully expands which can take a while I’m feeling fairly good. I think once they get all the issues straightened out I will feel even better, but what I’m most thankful for is being alive!!! I’m focused on looking towards my bright future and I am progressing well as I can. I have my nissan and gallbladder surgery Feb 6th and hoping and praying for no complications. Please continue to pray my friends and I can continue to do well. God bless!
My dear Heather. . . still praying. You are such a fighter. Keep going. Shalom
so glad you are progressing. steady and slow is the goal for now
Slow and steady, Heather. You’re in God’s hands. He’ll take care of you. Always prayers going out to you and your family.
Heather…you are going through so much and I know everyday is a miracle from God. I also suffer from a chronic illness…not as serious as yours but it’s a daily challenge. I know you have learned this lesson….to depend on God for every second, of every minute,of everyday and every month of your life. I don’t live in advance… but for now…I’m thankful for the ….now. I never knew how precious a minute is until I suffered from this illness.
You have much that you have to deal with and you have made it to this day…this minute. I’ve learned to make the most out of each day and to be thankful for each minute. The joy in my life is my relationship with God, my family and ministering to other people. I live to help other no matter how small. I believe it’s what’s keeping me going. I’ve used blogging to do this because it doesn;t require me to use a lot of energy.
On New Years eve… I had 4,500 read my blog. All together for those 3 days it was a total of 8,000 views. Never in my life did I ever think I could reach so many people. Continue to share your story…it’s your precious life…it’s you. Yes you have a very special life and you will be rewarded by the Lord as He says in Revelations that there is a crown for those who have suffered. In your precious life that you have now… God has given you His grace and that’s what is helping you every second…every minute of the day. It’s amazing grace!
God bless you Heather and keep you in the HIs care. May He fill your heart with His love and remove all fear. May He give you all the strenght you need and heal your body. Most of all …May you feel His love for you… in Jesus name…amen.